MANAGED CARE

The following list represents some useful internet websites that contain managed care information relating to persons with disabilities. Please let us know if you are aware of other appropriate websites.

Administration on Aging (AoA)

(Federal agency that has the single charge of serving the nation's 43 million seniors.)

Managed Care Principles:

http://www.aoa.dhhs.gov/network/managedcare.html

American Association on Mental Retardation Managed Care Resource Center

(Information about managed care, with a particular emphasis on long-term care.)

http://www.aamr.org/ManagedCare/ManagedCare.htm

The Arc

(Largest voluntary, non-profit organization committed to the welfare of all children and adults with mental retardation and their families. This site provides general information on programs, materials, and other resources on managed care.)

Selected Resources on Managed Care and Developmental Disabilities:

http://thearc.org/depts/mcrl.html

Bazelon Center for Mental Health Law

(Leading national legal advocate for people with mental illness and mental retardation.)

http://www.bazelon.org/mancare.html

Center for Health Care Strategies

(Non-profit, non-partisan policy and resource center established in 1995)

Link to children's issues in managed care:

http://www.chcs.org/cimc.htm

Children’s Medical Center of Dallas

(Private non-profit health care facility that deals exclusively with a variety of diseases and disorders among children from birth to age 18.)

Managed Care Website:

http://www.childrens.com/mangcare.htm

The Consortium for Citizens with Disabilities (CCD)

(Working coalition of approximately 100 national consumer, advocacy, provider and professional organizations which advocate on behalf of people of all ages with physical and mental disabilities and their families.)

Main Homepage:

http://www.C-C-D.org

CCD Health Care Task Force:

http://www.aamr.org/ManagedCare/PrinciplesForManaged970115.htm

Disabilities Information Resources

(New non-profit organization that collects information on disabilities and disabilities related subjects)

http://www.dinf.org/national.htm

Disable Hotline

(Forum for issues relating to persons with disabilities, including managed care)

http://www.delphi.com/disable

Families USA

(National nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.)

Managed Care Central Website:

http://www.familiesusa.org/managedcare/

Link to Other Managed Care Websites:

http://www.familiesusa.org/managedcare/resource.htm

Family Voices

(National, grassroots clearinghouse for information and education concerning the health care of children with special health needs.)

Publications:

http://www.familyvoices.org/publist.html

Other links of interest:

http://www.familyvoices.org/links.html

Health Resources and Services Administration (HRSA)

(HRSA directs national health programs which improve the health of the Nation by assuring quality health care to underserved, vulnerable and special needs populations and by promoting appropriate health professions workforce capacity and practice, particularly in primary care and public health.)

Center for Managed Care:

http://www.hrsa.gov/cmc/

Independent Living Research Utilization at TIRR

(The Center provides national leadership on the major health service and health policy issues facing consumers with disabilities in managed health care arrangements. The Center conducts research; prepares special policy analyses, hosts forums for discussion; presents expert testimony to Congress and governmental agencies; publishes in the health policy, consumer, and trade literature; trains graduate students with disabilities in health services research; and disseminates findings to the diverse consumer, provider, payer, academic, and policy making audiences.)

Research and Training Center on Managed Health Care and Disability:

http://www.ilru.org/mgdcare/index.html

Institute for Child Health Policy

(Focuses on children in managed care with a special emphasis on children with special health care needs.)

http://www.ichp.edu

Institute for Health and Disability

(Network of programs and information for children, youth, and their families.)

http://www.peds.umn.edu/Centers/ihd

Interagency Committee on Disability Research (ICDR)

(Coordinates and promotes cooperation between Federal Agencies, and compiles statistics and other information concerning disability and rehabilitation research.)

http://www.ncddr.org/icdr/

Liberty Resources

(Non-profit, consumer driven organization that advocates and promotes independent living for persons with disabilities)

Managed Care Information:

http://www.libertyresources.org/mc/mc-index.html

MCARE: National Clearinghouse on Managed Care and Long-Term Services and Support for Adults with Developmental Disabilities and Their Families

(MCARE provides information to support the needs of individuals with disabilities, their families, policy makers, service providers, advocates, and others in the area of managed care and long-term supports and services. MCARE is funded through a grant from the Administration on Developmental Disabilities at the U.S. Department of Health and Human Services.)

http://www.mcare.net

Mental Health and Disability: Managed Care Advocacy Website

(Managed care issues relating to children with disabilities and their parents and providers.)

http://www.charm.net/~jmevans/

National Alliance for the Mentally Ill (NAMI)

(The nation's leading grassroots, self-help and family advocacy organization solely dedicated to improving the lives of people with severe mental illnesses such as

schizophrenia, bipolar disorder (manic depression), major depression, obsessive-compulsive disorder, and panic disorder.)

Policy and Legislation Website:

http://www.nami.org/policy.htm

National Council on Disability

(Independent federal agency that makes recommendations to the President and Congress on issues affecting persons with disabilities.)

http://www.ncd.gov/publications/publications.html

National Health Law Program

(National public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly and people with disabilities.)

Managed Care Website:

http://www.healthlaw.org/managedcare.shtml

National Parent Network on Disabilities (NPND)

(NPND’s mission is to provide a presence and national voice for all families of children, youth and adults with disabilities.)

http://www.npnd.org/

Office of the Assistant Secretary for Planning and Evaluation (ASPE)

(ASPE is the principal advisor to the Secretary of the Department of Health and Human Services on policy development, and is responsible for major activities in the areas of policy coordination, legislation development, strategic planning, policy research and evaluation, and economic analysis.)

Disabilities and Managed Care Website:

http://managedcare.hhs.gov

Paralyzed Veterans of America (PVA)

(Congressionally chartered veterans service organization founded more than 50 years ago to provide services for its members--veterans of the armed forces who have experienced a spinal cord injury or disease.)

Guide to Managed Care for People with Spinal Cord Injury or Disease:

http://www.pva.org/sci/gtmc/gtmc1.htm

Substance Abuse and Mental Health Services Administration (SAMHSA)

(SAMHSA's Office of Managed Care was created in November 1995 to reflect the commitment of SAMHSA to address the many difficult issues that managed care presents to consumers, payers, and providers)

Managed Care Initiative:

http://www.samhsa.gov/mc/mancare.htm

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